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Rare Info Market

Ziua Bolilor Rare 2021 - Centrul NoRo
Submitted by admindmb on Wed, 17/03/2021 - 15:09

Ziua Bolilor Rare 2021 - Centrul NoRo

Acest material video a fost realizat în campania de Ziua Bolilor Rare 2021 cu sprijinul:

link download:
https://bolirareromania.ro/download/ZiuaBolilorRare2021-CentrulNoRo.mp4
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Materiale ZBR
Despre boala Pompe
Submitted by admindmb on Wed, 10/03/2021 - 08:45

Despre boala Pompe

Attachment Size

boala pompe.pdf 718.62 KB

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Materiale Boli Rare
Deficitul de L-AMINOACID-AROMATIC DECARBOXILAZĂ (AADC) - Diana Bârcă
Submitted by admindmb on Wed, 03/03/2021 - 09:15

Deficitul de L-AMINOACID-AROMATIC DECARBOXILAZĂ (AADC) - Diana Bârcă

Attachment Size

zoom_6.mp4 32.22 MB

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Materiale Boli Rare
Material hemofilie - testimonial pacient
Submitted by admindmb on Tue, 02/03/2021 - 15:44

Material hemofilie - testimonial pacient

Attachment Size

Montaj Testimonial pacient.mp4 188.1 MB

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Materiale Boli Rare
Tratamente actuale in boli rare - Amiotrofia spinala
Submitted by admindmb on Tue, 02/03/2021 - 15:36

O prezentare a Dr. Ioana Minciu, medic neurologie pediatica in Clinica NP Spital Obregia cu titlul Tratamente actuale in boli rare - respectiv Amiotrofia spinala, posibilități actuale de tratament.

Attachment Size

Posibilitati actuale de tratament in AMS.mp4 41.53 MB

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Materiale Boli Rare
The power of genetic testing_Kirsty Wells
Submitted by admindmb on Tue, 02/03/2021 - 15:14

Kirsty Wells, genetician senior vorbește pentru Ziua Bolilor Rare 2021 din partea Blueprint Genetics subliniind importanța testării genetice

Attachment Size

The power of genetic testing_Kirsty Wells.mp4 337.89 MB

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Materiale Boli Rare
Mesajul MS Margareta Ziua Bolilor Rare 2021
Submitted by admindmb on Tue, 02/03/2021 - 14:45

Mesajul MS Margareta Ziua Bolilor Rare 2021 subtitrat RO

Attachment Size

Mesajul MS Margareta Ziua Bolilor Rare 2021 subtitrat RO.mp4 247.88 MB

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Materiale ZBR
Video ZBR 2013 - Eurordis
Submitted by admindmb on Tue, 23/02/2021 - 13:45

Video ZBR 2013 - Eurordis

Attachment Size

Rare Disease Day, Feb. 28, 2013 Official Video Short Version.mp4 10.2 MB

Rare Disease Day, Feb. 28, 2013 Official Video.mp4 49.27 MB

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Materiale ZBR
Video ZBR 2019
Submitted by admindmb on Tue, 23/02/2021 - 13:43

Video ZBR 2019

Attachment Size

Ziua Bolilor Rare 2019 testimonial din România.mp4 46.77 MB

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Materiale ZBR
Video ZBR 2010
Submitted by admindmb on Tue, 23/02/2021 - 13:42

Video ZBR 2010

Attachment Size

zbr 2010 (Echipa de Fotbal).mpg 13.74 MB

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Materiale ZBR

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